In the heart of their home, Alia Curtis, aged 11, shares moments of laughter with her parents, Regan Zwald and Edward Curtis, as they eagerly await the arrival of the school bus. However, Alia’s journey is distinct; she navigates life with Rett syndrome, a rare genetic neurologic disorder that poses unique challenges. This condition brings about a progressive loss of motor and speech skills, rendering Alia reliant on assistance for every aspect of her day.

Despite her approval for nursing care, the family faces a daunting reality: there simply aren’t enough caregivers available to meet Alia’s needs throughout the day. Yet, amidst these challenges, Alia’s resilience shines through. With the unwavering support of her devoted parents, she thrives, finding alternative means of communication through an eye gaze device.

This remarkable device detects Alia’s eye movements, allowing her to select words and phrases, offering a window into her thoughts and desires. Though non-verbal, Alia’s eyes speak volumes, conveying her understanding of the world around her. Regan Zwald, Alia’s mother, affirms, “She understands everything that’s going on,” highlighting the importance of treating her daughter as the vibrant eleven-year-old she is.

For Alia, communication transcends spoken words; it is a connection fostered through the language of her gaze. With each glance, she articulates her needs, preferences, and emotions, bridging the gap between her inner world and the external realm.

As Alia navigates the complexities of Rett syndrome, her family stands by her side, advocating for her well-being and ensuring she receives the care and support she deserves. Through their unwavering love and dedication, they empower Alia to embrace life to the fullest, celebrating her unique journey and the remarkable spirit that defines her.