Parenting comes with its own set of joys and challenges, but for some parents, the journey takes an unexpected turn with the diagnosis of conditions like epilepsy. One mother shares her story of navigating through the realities of raising a child with seizures, where her phone is filled with videos capturing these moments rather than the typical cute photos.

A Mother’s Perspective on Epilepsy

For Sarah, a mother , parenthood took a unique path when her baby was diagnosed with epilepsy. “When most parents are capturing their child’s first smile or first steps, I found myself recording my baby’s seizures,” she recalls. “It’s a different kind of parenting, one filled with uncertainty and fear.”

From Joy to Concern: Capturing Seizures on Video

Sarah’s journey began with noticing unusual movements in her baby, which later were diagnosed as seizures. “I started recording these episodes to show doctors and specialists,” she explains. “It’s heartbreaking to watch, but crucial for understanding and managing my baby’s condition.”

The Emotional Toll of Epilepsy

Living with a child who has epilepsy brings emotional challenges that extend beyond the medical aspects. “It’s a rollercoaster of emotions,” Sarah admits. “From feeling helpless during a seizure to hoping for better days, each moment is a reminder of how fragile life can be.”

Raising Awareness and Seeking Support

Sarah emphasizes the importance of raising awareness about epilepsy and supporting other parents in similar situations. “Sharing these videos isn’t easy, but it’s necessary,” she says. “It helps educate others about epilepsy and fosters empathy and understanding.”

Shifting Perspectives: Redefining Moments of Joy

Despite the challenges, Sarah finds moments of joy in her parenting journey. “While my phone might not have the typical cute baby photos, every smile my baby gives between seizures is precious,” she shares. “It’s about cherishing those moments and finding strength in them.”

Coping Strategies and Support Systems

Sarah credits her support system—family, friends, and healthcare professionals—for helping her navigate through the ups and downs of epilepsy. “Their understanding and encouragement keep me going,” she acknowledges. “Together, we’re learning and adapting to provide the best care for my baby.”